Benjamin and I enjoyed a much more relaxing day today. He slept well; I did not, because a floating nurse from PICU kept trying to give Benjamin oxygen. I assured… Continue Reading Day 630/2
Tag: steroids
Day 629/1
Benjamin slept soundly. He received a platelet transfusion in the night, and another one when he woke up, elevating his platelet level to 47,000–just below the threshold required for his… Continue Reading Day 629/1
Day 611
Benjamin woke up early with a very sore tummy. Only the bath would make him feel better; he wanted no Kytril, no Zantac, nothing. I’m curious to see what his… Continue Reading Day 611
Day 610
Today marks the halfway point of Benjamin’s 1219 day treatment for Acute Lymphoblastic Leukemia. Halfway. The milestone underscored how important it is that I maintain a perspective of presence. I… Continue Reading Day 610
Day 608
Both boys were healthy and ready to go to school this morning. Mike was out the door before the sun rose. I, however, woke up with Benjamin’s cold. I got… Continue Reading Day 608
Day 607
We got home last night this morning at 3am. Benjamin went through the highly invasive emergency room protocol: port access, peripheral poking and blood draw, insanely sticky nodes on his… Continue Reading Day 607