Benjamin’s reinduction phase is halfway complete. He took his last dose of Dexamethasone tonight. His allopurinol has been discontinued because his uric acid has stabilized, as has his phosphorous, sodium… Continue Reading Day 642/14
Tag: virus
Day 608
Both boys were healthy and ready to go to school this morning. Mike was out the door before the sun rose. I, however, woke up with Benjamin’s cold. I got… Continue Reading Day 608
Day 607
We got home last night this morning at 3am. Benjamin went through the highly invasive emergency room protocol: port access, peripheral poking and blood draw, insanely sticky nodes on his… Continue Reading Day 607
Day 605
Benjamin woke up several times throughout the night. At 5am he took a hot bath and asked for Kytril. At 7am, he did the same thing. I couldn’t give him… Continue Reading Day 605
Day 604
It was a good feeling to wake up and know that we had a Saturday in Sarasota together. No one had to work today. No one had school projects today.… Continue Reading Day 604
Day 581
Our bags are packed and our alarms are set. We leave for Camp Highlands in the morning. This will be Benji’s first flight since he was diagnosed. I am so… Continue Reading Day 581