Day 650/22

So much information to process, constantly. So many opportunities to wander down dangerous roads, mentally. The rewards are great when the mind is quiet and presence comes easy. Benjamin and I tried to sleep as best we could, but last night’s dose of lasix woke us up hourly for urine collection. It was effective, however.… Continue Reading Day 650/22

Day 643/15

Benjamin’s sleepiness continues as his counts keep dropping. He didn’t wake up until morning rounds, when he heard me talking with Dr. Moore and our nursing team. There were no changes to report, just a plan for the day that would accommodate Benji’s Dasatanib, Vincristine, Dexrazoxane, Daunorubicin, and final Erwinia shots. Aunt Sarah brought Benji… Continue Reading Day 643/15

Day 636/8

Today was Day 8 of Benjamin’s reinduction therapy. He has had chemotherapy in nearly every way possible today. Through it all his attitude has been sparkly and sweet. He has been patient and calm. He has kept the nurses happy and kept our spirits strong. Since Benji couldn’t eat this morning, I tried to let… Continue Reading Day 636/8

Day 635/7

Benjamin wrapped up his first week of reinduction today. Other than Dexamethasone, he got a break from chemotherapeutic medicines–a day off, except for allopurinol, Zantac, calcium, fluids, baking soda rinses, blood draws and vital signs. We used the day off to complete more schoolwork and communicate with Benji’s teachers about future lessons. Benji is caught… Continue Reading Day 635/7

Day 629/1

Benjamin slept soundly. He received a platelet transfusion in the night, and another one when he woke up, elevating his platelet level to 47,000–just below the threshold required for his colonoscopy and endoscopy. The team was satisfied with this number, so we moved forward. Day One. Michael and Banyan arrived just before the doctors made… Continue Reading Day 629/1