Benjamin’s day began at 5:30am, when our night nurse came to deaccess his port. He was sleepy but kind, and understood the plan. The nurse used a fast acting numbing… Continue Reading Day 677/49
Day 677/49
on Tag: dexamethasone
on Day 676/48
on I was hopeful this morning’s labs would show some reverse in yesterday’s trend, but they did not. The blasts in Benji’s blood increased a little more. His platelet transfusion was completely… Continue Reading Day 676/48
Day 671/43
on Benji’s Blinatumomab began its slow drip at 5:12 this morning. Twenty hours in, and so far, so good. It seems like such a mundane phrase for such a big day.… Continue Reading Day 671/43
Day 640/12
on Benjamin has had what his nurses described as an “eventful day.” This morning seems like ages ago. Once again I let Benjamin sleep as late as possible. When he woke… Continue Reading Day 640/12
Day 630/2
on Benjamin and I enjoyed a much more relaxing day today. He slept well; I did not, because a floating nurse from PICU kept trying to give Benjamin oxygen. I assured… Continue Reading Day 630/2
Day 629/1
on Benjamin slept soundly. He received a platelet transfusion in the night, and another one when he woke up, elevating his platelet level to 47,000–just below the threshold required for his… Continue Reading Day 629/1