Benjamin’s procedures have all been completed safely. He slept comfortably through almost everything. Now, we wait, as we have done so many times before. I stayed awake through Benjamin’s first… Continue Reading Day 755/127
Day 755/127
on Tag: intrathecal chemotherapy
on Day 749/121
on Today was like one long roller coaster. My stomach hasn’t quite recovered. Things are quiet and peaceful now, and Benjamin is soundly sleeping. For that I am grateful. We woke… Continue Reading Day 749/121
Day 743/115
on Our path looks much more clear today. The National Institutes of Health considers Benjamin a viable candidate for their CAR-T clinical trial targeting the CD22 protein. It’s such a relief to… Continue Reading Day 743/115
Day 629/1
on Benjamin slept soundly. He received a platelet transfusion in the night, and another one when he woke up, elevating his platelet level to 47,000–just below the threshold required for his… Continue Reading Day 629/1
Day 550
on Today, July 4th, we rested, relaxed, feasted with family, enjoyed the water, and shot a few fireworks in the street as night fell. Tomorrow, July 5th, we return to All… Continue Reading Day 550
Day 411
on There was a lightning storm last night, and our power went out. As a result, our huge scaredy-dogs kept me awake much of the night, shaking at my side, needing… Continue Reading Day 411