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Tag: acute lymphoblastic leukemia

In the Quiet.

Laura Gilkey on February 15, 2017May 10, 2017

In the quiet, comes the grief. In the wind in the backyard. In the sink washing dishes. In the lighting of a candle. In his huge, unbelievable absence. I was alone… Continue Reading In the Quiet.

Categories: Uncategorized Tags: acute lymphoblastic leukemia, death, siblings48 Comments

A Day of Love, and an Announcement.

Laura Gilkey on February 14, 2017May 10, 2017

Michael and I couldn’t sleep last night. We both reverted to hourly wake-ups. The first pot of coffee was brewed this morning at 5am. We’ll get used to this, and… Continue Reading A Day of Love, and an Announcement.

Categories: Uncategorized Tags: acute lymphoblastic leukemia, fundraising, research37 Comments

Day 772/144

Laura Gilkey on February 11, 2017May 10, 2017

  I knew that Benjamin would die today. I knew that I would walk outside and feel the Florida February sunshine on my skin, and he wouldn’t, and I would… Continue Reading Day 772/144

Categories: Uncategorized Tags: acute lymphoblastic leukemia, death169 Comments

Day 771/143

Laura Gilkey on February 10, 2017May 10, 2017

The energy in the room has shifted once again. This happened as the day progressed; this morning, Benjamin walked to the bathroom. This morning, Benjamin was still drinking small sips… Continue Reading Day 771/143

Categories: Uncategorized Tags: acute lymphoblastic leukemia, death

Day 770/142

Laura Gilkey on February 9, 2017May 10, 2017

Comments will be disabled for the foreseeable future as our family focuses on Benjamin’s peaceful passage. Your love and prayers are acutely felt and deeply appreciated. There has been another… Continue Reading Day 770/142

Categories: Uncategorized Tags: acute lymphoblastic leukemia, death, family, love, platelets, relapse, research, siblings

Day 769/141

Laura Gilkey on February 8, 2017May 10, 2017

Since Benjamin’s diagnosis, we have asked for guidance to make decisions for his highest good. Today we were guided in a direction we did not expect, but one that could… Continue Reading Day 769/141

Categories: Uncategorized Tags: acute lymphoblastic leukemia, baths, fever, home, hospice, hospital, nurses, pain, palliative care, relapse, transfusions82 Comments

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