Day 768/140

“Hope is important because it can make the present moment less difficult to bear. If we believe that tomorrow will be better, we can bear a hardship today.” ~Thich Nhat Hanh Benjamin had such a beautiful window of clarity before we went to sleep last night that Michael and I decided in whispers to approach… Continue Reading Day 768/140

Day 760/132

“Stand up straight and realize who you are, that you tower over your circumstances. You are a child of God. Stand up straight.” ~Maya Angelou These words saved me today. When I felt myself start to crumble, instead I stood a little straighter. Now is not the time. There is work to be done. Benjamin’s… Continue Reading Day 760/132

Day 755/127

Benjamin’s procedures have all been completed safely. He slept comfortably through almost everything. Now, we wait, as we have done so many times before. I stayed awake through Benjamin’s first platelet transfusion at 2am, then we both slept as late as we possibly could. I peeked at his labs during shift change. They held steady with… Continue Reading Day 755/127

Day 752/124

and everything seems to have gone terribly wrong that can but one breath at a time is an acceptable plan she tells herself and the air is still there  ~ani difranco   It seems that as soon as we have a moment to exhale, it’s time to take another deep breath. This morning Benjamin felt… Continue Reading Day 752/124

Day 658/30

It doesn’t look like we’ll be going home any time soon. Benji was pleased to wake up unhooked from his fluids again. He usually gets up to empty his bladder right away, especially after a night with no bathroom breaks. But this morning the urgency wasn’t there. I asked him if he needed to go,… Continue Reading Day 658/30