on Today was like one long roller coaster. My stomach hasn’t quite recovered. Things are quiet and peaceful now, and Benjamin is soundly sleeping. For that I am grateful. We woke up at 6am again this morning and Benjamin got straight into the tub, then back to bed for a couple of hours. The morning lab… Continue Reading Day 749/121
on We got home last night this morning at 3am. Benjamin went through the highly invasive emergency room protocol: port access, peripheral poking and blood draw, insanely sticky nodes on his chest, prophylactic intravenous antibiotics, a bolus of saline, a chest x-ray, and a respiratory viral swab that went way, way too far up the nasal… Continue Reading Day 607
on I woke up early this morning. I saw Michael off to work and enjoyed a full two hours of silence and space before the boys woke up. It allowed me some time to write. I didn’t get many words on the page, but the words I did put together felt like exactly what I wanted… Continue Reading Day 587
on There were boys flying in and out of our house all day today. Neighbors excited to welcome Banyan home, to play with Benjamin again, to relish in the freedom of these last two weeks before school starts. Bike rides to the park, basketball here at home, all manner of games played. Their occupation allowed me… Continue Reading Day 586
on Benji slept a lot last night. He woke up with a tender tummy again but excited to go spend the day with his Grammy. They had big plans, and big fun, and even though I sent the Kytril with her just in case, he wouldn’t need it. So far, his increase in Methotrexate has been… Continue Reading Day 580
on Over the bridge we went today. Benjamin woke in good spirits, but his tummy was hurting. He was super hungry but nervous about eating. I reminded him that the last time we went to the hospital, he became nauseous from thinking about the medicine. I suggested that this time he take Kytril before we even… Continue Reading Day 579