on Benjamin and I enjoyed a much more relaxing day today. He slept well; I did not, because a floating nurse from PICU kept trying to give Benjamin oxygen. I assured her he didn’t need it. He was sleeping deeply, and I knew those tubes would do more harm than good to his rest. I asked… Continue Reading Day 630/2
on Today marks the halfway point of Benjamin’s 1219 day treatment for Acute Lymphoblastic Leukemia. Halfway. The milestone underscored how important it is that I maintain a perspective of presence. I struggled today. I had expectations of reaching this day and feeling celebratory; of standing with Benjamin at the pinnacle of this steep mountain and letting… Continue Reading Day 610
on I woke up well rested and with a full heart after yesterday’s success, only to learn within moments of the tragedy that struck my childhood town last night. My first reaction was intense anger. I had been so proud of the 33 units of blood we collected yesterday to help cancer families–and this morning, every ounce… Continue Reading Day 528
on When I’m tired, fear is harder to fight. I know this is true tonight. The boys both had great days at school. Benjamin had a field trip to our local YMCA for a group swimming lesson. This is something I would have been petrified of a year ago; today, I easily decided that the benefit… Continue Reading Day 502
on I am almost out of gas, literally and figuratively. My car’s tank has 8 miles left in it. We hit the ground running at 6am, all of us, and didn’t stop until just now. I’m exhausted but feeling very fulfilled. At this time last year we were packing our hospital bags and embarking on one… Continue Reading Day 488
on The boys had the day off from school today. It was a nice, relaxing Friday; we watched movies and packaged up rainbow stars in the morning. Banyan joined his friends for a pickup game in the afternoon and I took Benji to the toy store to redeem a birthday gift certificate he’d been saving. And… Continue Reading Day 449