Day 755/127

Benjamin’s procedures have all been completed safely. He slept comfortably through almost everything. Now, we wait, as we have done so many times before. I stayed awake through Benjamin’s first platelet transfusion at 2am, then we both slept as late as we possibly could. I peeked at his labs during shift change. They held steady with… Continue Reading Day 755/127

Day 753/125

It was still dark this morning when Benjamin woke up wincing. He said he’d had a bad dream. I asked him to tell me about it, he said he forgot, and went right back to sleep. I looked at the foggy sky, barely pink with the sunrise, and told myself if I could make out the Skyway,… Continue Reading Day 753/125

Day 650/22

So much information to process, constantly. So many opportunities to wander down dangerous roads, mentally. The rewards are great when the mind is quiet and presence comes easy. Benjamin and I tried to sleep as best we could, but last night’s dose of lasix woke us up hourly for urine collection. It was effective, however.… Continue Reading Day 650/22

Day 642/14

Benjamin’s reinduction phase is halfway complete. He took his last dose of Dexamethasone tonight. His allopurinol has been discontinued because his uric acid has stabilized, as has his phosphorous, sodium and calcium. His internal rapid response team is backing off a little, making way for the next line of defense. Things feel a little less… Continue Reading Day 642/14

Day 640/12

Benjamin has had what his nurses described as an “eventful day.” This morning seems like ages ago. Once again I let Benjamin sleep as late as possible. When he woke up he was super hungry. He wanted to go down to the cafeteria and use the bagel toaster for the sesame bagel his Grammy left… Continue Reading Day 640/12

Day 637/9

Today was much calmer than yesterday. Benjamin needed the slower pace. His spirits were high but his body was tired. We honored that, and had a restful, restorative day. Benjamin’s cells continue to perform as expected. His marrow is being suppressed. His ANC, hemoglobin and white blood cell production are on a slow and steady… Continue Reading Day 637/9