A nightmare woke Benji up today before his nurses did this morning. He was scared and didn’t want to go back to sleep. He returned to reality, nestled into me… Continue Reading Day 646/18
Day 646/18
on Tag: Erwinia
on Day 645/17
on Benjamin was super tired this morning. He slept in later than he has since we’ve been here. I figured after yesterday’s diuretic episode he was probably pretty depleted and needed… Continue Reading Day 645/17
Day 643/15
on Benjamin’s sleepiness continues as his counts keep dropping. He didn’t wake up until morning rounds, when he heard me talking with Dr. Moore and our nursing team. There were no… Continue Reading Day 643/15
Day 641/13
on Benjamin had another sleepy day. His counts continue to drop, and his ability to fight infection is waning. After he woke up, ate breakfast, and took his morning medicine, we… Continue Reading Day 641/13
Day 640/12
on Benjamin has had what his nurses described as an “eventful day.” This morning seems like ages ago. Once again I let Benjamin sleep as late as possible. When he woke… Continue Reading Day 640/12
Day 638/10
on Benjamin’s tiredness continued today. He slept until 10am. Our nurse was wonderful and flexible and let him sleep, holding his morning medicine an hour to accommodate. It sounds minor, but… Continue Reading Day 638/10