Benjamin’s path has been made clear, and it leads to Philadelphia. Our morning began with an encouraging lab report. Benjamin’s platelets would need transfusion, but his white blood cell count… Continue Reading Day 680/52
Day 680/52
on Tag: bone marrow transplant
on Day 671/43
on Benji’s Blinatumomab began its slow drip at 5:12 this morning. Twenty hours in, and so far, so good. It seems like such a mundane phrase for such a big day.… Continue Reading Day 671/43
Day 659/31
on Benjamin didn’t get up at all last night to use the bathroom, but when he woke up this morning, he corrected his problem with a record-breaking liter of urine. I’ve… Continue Reading Day 659/31
Day 653/25
on Benjamin had a great day today, despite plummeting numbers. His neutrophil count is just 40. That’s lower than it’s been in over a year; he has virtually no immune system.… Continue Reading Day 653/25
Day 650/22
on So much information to process, constantly. So many opportunities to wander down dangerous roads, mentally. The rewards are great when the mind is quiet and presence comes easy. Benjamin and… Continue Reading Day 650/22
Day 639/11
on Benjamin slept quite late this morning. I was relieved when he woke up, went to the bathroom, and balanced his input and output. He won’t need lasix tonight. He is… Continue Reading Day 639/11