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Tag: siblings

Day 673/45

Laura Gilkey on November 4, 2016November 5, 2016

Benji slept soundly. When he woke up, he complained pretty seriously of stomach pain. He stood up to go to the bathroom and blood filled the tubing coming from his port.… Continue Reading Day 673/45

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, relapse, siblings1 Comment

Day 660/32

Laura Gilkey on October 22, 2016October 23, 2016

Today was a good day. I don’t have expectations, but I have hope, and that is a much different and more beautiful animal. Benji and I slept in, Saturday style.… Continue Reading Day 660/32

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, blood pressure, family, friends, platelets, relapse, siblings3 Comments

Day 659/31

Laura Gilkey on October 21, 2016October 22, 2016

Benjamin didn’t get up at all last night to use the bathroom, but when he woke up this morning, he corrected his problem with a record-breaking liter of urine. I’ve… Continue Reading Day 659/31

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bladder, Blinatumomab, bone marrow transplant, CMMRD, immunotherapy, relapse, siblings6 Comments

Day 656/28

Laura Gilkey on October 18, 2016October 19, 2016

Benjamin woke up in the middle of the night with low belly pain. I asked him to describe it as he was falling back to sleep, and he said, tearfully, “I… Continue Reading Day 656/28

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, blood donation, marriage, platelets, port, relapse, school, siblings4 Comments

Day 654/26

Laura Gilkey on October 16, 2016October 17, 2016

This Sunday began quietly. Benji slept in a little, and I enjoyed my morning coffee over some research. My moms’ group came through for me on the platelet desensitization question. It… Continue Reading Day 654/26

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, grandparents, nausea, platelets, port, relapse, siblings4 Comments

Day 643/15

Laura Gilkey on October 5, 2016October 6, 2016

Benjamin’s sleepiness continues as his counts keep dropping. He didn’t wake up until morning rounds, when he heard me talking with Dr. Moore and our nursing team. There were no… Continue Reading Day 643/15

Categories: Uncategorized Tags: acute lymphoblastic leukemia, baseball, dasatanib, daunorubicin, dexrazoxane, Erwinia, methotrexate toxicity, relapse, school, siblings, vincristine1 Comment

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