Our intention was unmistakable. A clear path toward Benjamin’s perfect healing. Today we heard the words “no clear path,” and “imperfect options.” I realized today that we aren’t waiting for a path to appear… Continue Reading Day 742/114
Tag: Blinatumomab
Day 715/87
It’s 3:45am. Benjamin just vomited every bit of last night’s nourishment from his body. He has abdominal pain he can’t describe. I don’t know anymore if it’s a result of… Continue Reading Day 715/87
Day 692/64
Benjamin woke up early this morning with a high fever and tummy pain. He vomited during shift change a few minutes later. It was a strange, dark, pungent liquid. There… Continue Reading Day 692/64
Day 687/59
It was a very busy day up here on 7 South. I was pouring my first cup of coffee when the phone rang. It was the nurse navigator for the… Continue Reading Day 687/59
Day 681/53
Benjamin had a great day today. So did Banyan. I’m grateful for two happy children, and for the first step on a new path. I woke up to the sounds… Continue Reading Day 681/53
Day 680/52
Benjamin’s path has been made clear, and it leads to Philadelphia. Our morning began with an encouraging lab report. Benjamin’s platelets would need transfusion, but his white blood cell count… Continue Reading Day 680/52