Day 688/60

Benjamin didn’t sleep very well last night. His side was hurting intensely after yesterday’s platelet transfusion. I woke up before he did, when our day shift nurse came in to tell me he’d be getting a red blood cell transfusion today. I had a sinking feeling about his labs. I hate that feeling. His hemoglobin… Continue Reading Day 688/60

Day 654/26

This Sunday began quietly. Benji slept in a little, and I enjoyed my morning coffee over some research. My moms’ group came through for me on the platelet desensitization question. It is, indeed, a thing, and it’s called “platelet refractoriness.” Later in the day, Michael spoke to Dr. Grana about it. Platelet refractoriness becomes more of… Continue Reading Day 654/26

Day 652/24

We woke up to good news this morning. Those blasts that went off to pathology were indeed recovery blasts. There are still no leukemia blasts in Benjamin’s peripheral blood. We will have to wait a week or so to learn what’s left in his marrow. Benjamin’s absolute neutrophil count (ANC) crept up to 120, but… Continue Reading Day 652/24

Day 621

Last night it was Benji’s turn to have a nightmare. He woke up so scared, but wouldn’t tell me what he was dreaming about. He didn’t want to go back to sleep. I kept saying, it’s a good thing it was only a dream. It’s a good thing it was only a dream. Benji walked down… Continue Reading Day 621