Day 747/119

We’re back on the seventh floor. It’s where we need to be right now. I’ve felt terrified, angry, guilty, relieved, and grateful today. Sitting here to write this feels exhausting, but these are just words. Benjamin has shown me what true resilience is. The sky was cotton candy pink this morning as we left for… Continue Reading Day 747/119

Day 712/84

Benji woke up before the sun in horrible pain. I wondered what was happening; he felt so much better yesterday! He begged for a bath, but declined pain medicine. The bath made him feel better. When he got out, he vomited. I called our nurse and asked for his Kytril early, then got him comfortably… Continue Reading Day 712/84

Day 693/65

Today was a very good day. I admit the holiday-ness of it all threatened my emotional stability more than once. But Benji felt better today than he has in many days, and we just have so much to be thankful for. I am thankful for the blood donor whose platelets were infused into Benjamin’s veins… Continue Reading Day 693/65

Day 656/28

Benjamin woke up in the middle of the night with low belly pain. I asked him to describe it as he was falling back to sleep, and he said, tearfully, “I just don’t feel good.” I wasn’t sure how the day would progress. Thankfully he woke up feeling just fine, and continued feeling great all day.… Continue Reading Day 656/28

Day 621

Last night it was Benji’s turn to have a nightmare. He woke up so scared, but wouldn’t tell me what he was dreaming about. He didn’t want to go back to sleep. I kept saying, it’s a good thing it was only a dream. It’s a good thing it was only a dream. Benji walked down… Continue Reading Day 621