Less than 24 hours after being discharged from the hospital, Benjamin and the rest of us were on a boat on Sarasota Bay, catching one fish after another. It was… Continue Reading Day 663/35
Day 663/35
on Tag: dasatanib
on Day 662/34
on We. Are. HOME. I hardly slept last night. I’m not sure why. Every creak of the door sounded more amplified, every beep more pronounced. I sat up to watch the… Continue Reading Day 662/34
Day 658/30
on It doesn’t look like we’ll be going home any time soon. Benji was pleased to wake up unhooked from his fluids again. He usually gets up to empty his bladder… Continue Reading Day 658/30
Day 650/22
on So much information to process, constantly. So many opportunities to wander down dangerous roads, mentally. The rewards are great when the mind is quiet and presence comes easy. Benjamin and… Continue Reading Day 650/22
Day 643/15
on Benjamin’s sleepiness continues as his counts keep dropping. He didn’t wake up until morning rounds, when he heard me talking with Dr. Moore and our nursing team. There were no… Continue Reading Day 643/15
Day 640/12
on Benjamin has had what his nurses described as an “eventful day.” This morning seems like ages ago. Once again I let Benjamin sleep as late as possible. When he woke… Continue Reading Day 640/12