Day 756/128

The construction crew of the new hospital research building worked all night long last night, pouring the concrete slab on the top floor. Every time Benjamin woke up to urinate, or something beeped, or someone came in to check vitals, I’d glance outside and see men in hardhats dangling from harnesses or climbing up ladders,… Continue Reading Day 756/128

Day 755/127

Benjamin’s procedures have all been completed safely. He slept comfortably through almost everything. Now, we wait, as we have done so many times before. I stayed awake through Benjamin’s first platelet transfusion at 2am, then we both slept as late as we possibly could. I peeked at his labs during shift change. They held steady with… Continue Reading Day 755/127

Day 753/125

It was still dark this morning when Benjamin woke up wincing. He said he’d had a bad dream. I asked him to tell me about it, he said he forgot, and went right back to sleep. I looked at the foggy sky, barely pink with the sunrise, and told myself if I could make out the Skyway,… Continue Reading Day 753/125

Day 750/122

The goal for the day was to help Benjamin feel comfortable. I believe we are getting there. As the day comes to a close, I’m grateful that he feels better now than he did this morning. I am hopeful we are entering a healing, peaceful weekend. The pattern of the last few days repeated itself,… Continue Reading Day 750/122

Day 718/90

Benjamin and I slept well last night and were both awake at shift change. His numbers are holding steady. Saturday’s increase may have been sample bias, I don’t know; but since then we’ve seen the slow decline we’re used to from Inotuzumab. Each time I walk to the computer and look at the blasts category,… Continue Reading Day 718/90

Day 646/18

A nightmare woke Benji up today before his nurses did this morning. He was scared and didn’t want to go back to sleep. He returned to reality, nestled into me and said, “I’m glad you’re with me.” Me too, kid. Benji’s platelets were at 16,000 this morning, so a transfusion was ordered. Otherwise we expected… Continue Reading Day 646/18