Neither of us slept very well last night. Benjamin needed platelets to prepare him for today’s lumbar puncture, so our room filled with nurses at 3am, and at fifteen minute… Continue Reading Day 657/29
Day 657/29
on Tag: propofol
on Day 468
on For the first time since long term maintenance began, Benjamin went to school on the day following a lumbar puncture. I had a feeling he would. He woke up easily and calmly… Continue Reading Day 468
Day 411
on There was a lightning storm last night, and our power went out. As a result, our huge scaredy-dogs kept me awake much of the night, shaking at my side, needing… Continue Reading Day 411
Day 60
on It was a foggy drive over the Sunshine Skyway this morning. We weren’t sure what to expect today; all we had was an arrival time. We didn’t know the order… Continue Reading Day 60
Day 53
on We slept soundly last night. I’m so thankful for the rest, the patience, and the mental acuity that sound sleep provided as the day grew on. I’d need it. Benjamin’s… Continue Reading Day 53
Day 47
on Tuesday mornings are bridge walking mornings. I was grateful for the sunrise, the early start, and the clarity it provided. I felt prepared for the day as Benjamin and I… Continue Reading Day 47