Our path looks much more clear today. The National Institutes of Health considers Benjamin a viable candidate for their CAR-T clinical trial targeting the CD22 protein. It’s such a relief to… Continue Reading Day 743/115
Tag: inotuzumab
Day 742/114
Our intention was unmistakable. A clear path toward Benjamin’s perfect healing. Today we heard the words “no clear path,” and “imperfect options.” I realized today that we aren’t waiting for a path to appear… Continue Reading Day 742/114
Day 740/112
High highs and low lows today. Sunrises and sunsets. The comforts of home and the realities of leukemia. For the first time in far too long, my day began on… Continue Reading Day 740/112
Day 739/111
Benji is sleeping next to me. He is pleasantly exhausted from a long, busy day that went very well. Benji was a little nervous this morning and his tummy hurt.… Continue Reading Day 739/111
Day 735/107
We are home. Everything feels pretty overwhelming right now. So many emotions today and so much uncertainty ahead. Home is the word and the feeling and the place I am… Continue Reading Day 735/107
Day 728/100
We received the results of Benjamin’s bone marrow aspirate today. We don’t have the complete analysis, and a clear path has not yet been laid in front of us. But… Continue Reading Day 728/100