on Benji slept a lot last night. He woke up with a tender tummy again but excited to go spend the day with his Grammy. They had big plans, and big fun, and even though I sent the Kytril with her just in case, he wouldn’t need it. So far, his increase in Methotrexate has been… Continue Reading Day 580
on I slept extremely soundly last night and woke up feeling ready to take action. Benjamin woke up with a tender tummy and got straight into the bathtub. Fortunately his discomfort dissipated quickly. I’ve added some digestive issues to the list of things to discuss with his oncology team tomorrow. The sores on his lips don’t… Continue Reading Day 578
on Today is Michael’s birthday. Of all the many, many things for which I am thankful, his presence on this earth is at the top of my list. I marvel daily at my great fortune for having married such an amazing human being. On my way to work, I stopped at a coffee shop to meet… Continue Reading Day 510
on The sky was amazing at sunrise from my vantage point on the Ringling Bridge. I came home to prepare breakfast, get Banyan off to the bus stop, and apply numbing cream and dressing to Benji’s port. We kissed Michael goodbye and we were off. The drive north was uneventful. Benjamin’s spirits were high enough; he… Continue Reading Day 495
on It’s been a beautiful and emotional day. I’m grateful for this sweet white space. I need to shape words around feelings that have no names. The weather has cooled off for the last time before the dog days of summer. It is absolutely perfect outside. I brought both boys lunch at their schools today and… Continue Reading Day 491
on It isn’t Tuesday, but today I was able to spend some time catching up on cancer healing. Most of today’s work was soulful rather than physical, though I did send a followup email to Dr. Oshrine, copying our pediatric geneticist. I wanted to ask their thoughts on whether we should pursue additional genetic testing for… Continue Reading Day 483