Benjamin and I woke up during the morning blood draw. It was still dark. Our nurse had to do a cap change on Benjamin’s IV line because he got transfusions… Continue Reading Day 748/120
Day 748/120
on Tag: intrathecal methotrexate
on Day 746/118
on This has been our longest stretch away from the hospital since October. It’s been sweet, nourishing, comforting, and necessary. And I am so ready for it to end. Benjamin needs… Continue Reading Day 746/118
Day 657/29
on Neither of us slept very well last night. Benjamin needed platelets to prepare him for today’s lumbar puncture, so our room filled with nurses at 3am, and at fifteen minute… Continue Reading Day 657/29
Day 636/8
on Today was Day 8 of Benjamin’s reinduction therapy. He has had chemotherapy in nearly every way possible today. Through it all his attitude has been sparkly and sweet. He has… Continue Reading Day 636/8
Day 635/7
on Benjamin wrapped up his first week of reinduction today. Other than Dexamethasone, he got a break from chemotherapeutic medicines–a day off, except for allopurinol, Zantac, calcium, fluids, baking soda rinses,… Continue Reading Day 635/7
Day 551
on Today, Benji began the fourth of eleven total 84-day cycles during this long term maintenance phase of treatment. It has been a very long day, for Benjamin especially. I am so… Continue Reading Day 551