Day 760/132

“Stand up straight and realize who you are, that you tower over your circumstances. You are a child of God. Stand up straight.” ~Maya Angelou These words saved me today. When I felt myself start to crumble, instead I stood a little straighter. Now is not the time. There is work to be done. Benjamin’s… Continue Reading Day 760/132

Day 757/129

Benjamin was sitting on the toilet at 3am. He had just vomited and the basin was still full at my feet. His head rested on my belly while I held the tubes for his IV fluid and liquid nutrition up off of the floor with one hand, and scratched his back with the other. We… Continue Reading Day 757/129

Day 755/127

Benjamin’s procedures have all been completed safely. He slept comfortably through almost everything. Now, we wait, as we have done so many times before. I stayed awake through Benjamin’s first platelet transfusion at 2am, then we both slept as late as we possibly could. I peeked at his labs during shift change. They held steady with… Continue Reading Day 755/127