Day 752/124

and everything seems to have gone terribly wrong that can but one breath at a time is an acceptable plan she tells herself and the air is still there  ~ani difranco   It seems that as soon as we have a moment to exhale, it’s time to take another deep breath. This morning Benjamin felt… Continue Reading Day 752/124

Day 750/122

The goal for the day was to help Benjamin feel comfortable. I believe we are getting there. As the day comes to a close, I’m grateful that he feels better now than he did this morning. I am hopeful we are entering a healing, peaceful weekend. The pattern of the last few days repeated itself,… Continue Reading Day 750/122

Day 749/121

Today was like one long roller coaster. My stomach hasn’t quite recovered. Things are quiet and peaceful now, and Benjamin is soundly sleeping. For that I am grateful. We woke up at 6am again this morning and Benjamin got straight into the tub, then back to bed for a couple of hours. The morning lab… Continue Reading Day 749/121

Day 746/118

This has been our longest stretch away from the hospital since October. It’s been sweet, nourishing, comforting, and necessary. And I am so ready for it to end. Benjamin needs treatment. He is in pain more frequently and for longer periods of time now, and it is all stemming from his spleen. Tonight he said… Continue Reading Day 746/118

Day 741/113

Today was a really hard day. Benjamin woke up in pain, with his spleen hurting as badly as it did last night. I gave him a dose of morphine and helped him get as comfortable as possible. With the exception of a few hot baths, he didn’t leave our bed until early evening. Benjamin’s pain this… Continue Reading Day 741/113

Day 740/112

High highs and low lows today. Sunrises and sunsets. The comforts of home and the realities of leukemia. For the first time in far too long, my day began on the Ringling Bridge with my dear friend. It felt so good to walk with her again, to watch the sky turn orange over the bay, to… Continue Reading Day 740/112