Day 651/23

Benjamin slept in this morning. When he woke up he seemed a little down. Withdrawn. I sat with him and gave him space at the same time. I think he was just tired. Soon he was as spunky as usual, and we started our day with some schoolwork and music therapy. Benji is profoundly neutropenic… Continue Reading Day 651/23

Day 650/22

So much information to process, constantly. So many opportunities to wander down dangerous roads, mentally. The rewards are great when the mind is quiet and presence comes easy. Benjamin and I tried to sleep as best we could, but last night’s dose of lasix woke us up hourly for urine collection. It was effective, however.… Continue Reading Day 650/22