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Tag: acute lymphoblastic leukemia

Day 647/19

Laura Gilkey on October 9, 2016October 10, 2016

Benji woke up feeling happy. His daddy and brother were on their way to see him, and his body felt good. Our favorite nurse was back at morning shift change,… Continue Reading Day 647/19

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, Erwinia shortage, friends, port, relapse, school, transfusion2 Comments

Day 646/18

Laura Gilkey on October 8, 2016October 9, 2016

A nightmare woke Benji up today before his nurses did this morning. He was scared and didn’t want to go back to sleep. He returned to reality, nestled into me… Continue Reading Day 646/18

Categories: Uncategorized Tags: acute lymphoblastic leukemia, diarrhea, Erwinia, family, nausea, platelets, relapse, transfusion2 Comments

Day 645/17

Laura Gilkey on October 7, 2016

Benjamin was super tired this morning. He slept in later than he has since we’ve been here. I figured after yesterday’s diuretic episode he was probably pretty depleted and needed… Continue Reading Day 645/17

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, allopurinol, Erwinia, relapse, schoolLeave a comment

Day 644/16

Laura Gilkey on October 6, 2016October 7, 2016

I woke up early and tried to let Benji sleep as long as he could. When the day shift nurses started coming in, taking vitals, listening to his heart, getting… Continue Reading Day 644/16

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, chemotherapy, diarrhea, family, friends, platelets, relapse, school2 Comments

Day 643/15

Laura Gilkey on October 5, 2016October 6, 2016

Benjamin’s sleepiness continues as his counts keep dropping. He didn’t wake up until morning rounds, when he heard me talking with Dr. Moore and our nursing team. There were no… Continue Reading Day 643/15

Categories: Uncategorized Tags: acute lymphoblastic leukemia, baseball, dasatanib, daunorubicin, dexrazoxane, Erwinia, methotrexate toxicity, relapse, school, siblings, vincristine1 Comment

Day 642/14

Laura Gilkey on October 4, 2016October 4, 2016

Benjamin’s reinduction phase is halfway complete. He took his last dose of Dexamethasone tonight. His allopurinol has been discontinued because his uric acid has stabilized, as has his phosphorous, sodium… Continue Reading Day 642/14

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, colonoscopy, family, lynch syndrome, platelets, polyps, relapse, school, transfusion, virus4 Comments

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