Benjamin slept soundly. He received a platelet transfusion in the night, and another one when he woke up, elevating his platelet level to 47,000–just below the threshold required for his… Continue Reading Day 629/1
Day 629/1
on Tag: vincristine
on Day 607
on We got home last night this morning at 3am. Benjamin went through the highly invasive emergency room protocol: port access, peripheral poking and blood draw, insanely sticky nodes on his… Continue Reading Day 607
Day 579
on Over the bridge we went today. Benjamin woke in good spirits, but his tummy was hurting. He was super hungry but nervous about eating. I reminded him that the last… Continue Reading Day 579
Day 551
on Today, Benji began the fourth of eleven total 84-day cycles during this long term maintenance phase of treatment. It has been a very long day, for Benjamin especially. I am so… Continue Reading Day 551
Day 550
on Today, July 4th, we rested, relaxed, feasted with family, enjoyed the water, and shot a few fireworks in the street as night fell. Tomorrow, July 5th, we return to All… Continue Reading Day 550
Day 546
on Benjamin climbed into our bed this morning, where he stayed, sleeping soundly, until after 11am. This was a little disconcerting, and unlike him. When he climbed in he said he didn’t… Continue Reading Day 546