Today was a good day. I don’t have expectations, but I have hope, and that is a much different and more beautiful animal. Benji and I slept in, Saturday style.… Continue Reading Day 660/32
Day 660/32
on Tag: platelets
on Day 658/30
on It doesn’t look like we’ll be going home any time soon. Benji was pleased to wake up unhooked from his fluids again. He usually gets up to empty his bladder… Continue Reading Day 658/30
Day 657/29
on Neither of us slept very well last night. Benjamin needed platelets to prepare him for today’s lumbar puncture, so our room filled with nurses at 3am, and at fifteen minute… Continue Reading Day 657/29
Day 656/28
on Benjamin woke up in the middle of the night with low belly pain. I asked him to describe it as he was falling back to sleep, and he said, tearfully, “I… Continue Reading Day 656/28
Day 654/26
on This Sunday began quietly. Benji slept in a little, and I enjoyed my morning coffee over some research. My moms’ group came through for me on the platelet desensitization question. It… Continue Reading Day 654/26
Day 653/25
on Benjamin had a great day today, despite plummeting numbers. His neutrophil count is just 40. That’s lower than it’s been in over a year; he has virtually no immune system.… Continue Reading Day 653/25