Day 741/113

Today was a really hard day. Benjamin woke up in pain, with his spleen hurting as badly as it did last night. I gave him a dose of morphine and helped him get as comfortable as possible. With the exception of a few hot baths, he didn’t leave our bed until early evening. Benjamin’s pain this… Continue Reading Day 741/113

Day 657/29

Neither of us slept very well last night. Benjamin needed platelets to prepare him for today’s lumbar puncture, so our room filled with nurses at 3am, and at fifteen minute intervals thereafter. Morning labs were drawn at 6, and the results showed that his platelets had jumped to 28,000–just shy of the 30,000 necessary for… Continue Reading Day 657/29

Day 636/8

Today was Day 8 of Benjamin’s reinduction therapy. He has had chemotherapy in nearly every way possible today. Through it all his attitude has been sparkly and sweet. He has been patient and calm. He has kept the nurses happy and kept our spirits strong. Since Benji couldn’t eat this morning, I tried to let… Continue Reading Day 636/8

Day 635/7

Benjamin wrapped up his first week of reinduction today. Other than Dexamethasone, he got a break from chemotherapeutic medicines–a day off, except for allopurinol, Zantac, calcium, fluids, baking soda rinses, blood draws and vital signs. We used the day off to complete more schoolwork and communicate with Benji’s teachers about future lessons. Benji is caught… Continue Reading Day 635/7

Day 629/1

Benjamin slept soundly. He received a platelet transfusion in the night, and another one when he woke up, elevating his platelet level to 47,000–just below the threshold required for his colonoscopy and endoscopy. The team was satisfied with this number, so we moved forward. Day One. Michael and Banyan arrived just before the doctors made… Continue Reading Day 629/1

Day 628

I expected a big challenge today. Instead, Benjamin totally rose to the occasion. He has been an absolute joy, even with no food and a totally empty gastrointestinal tract, all day long. Benjamin’s platelets reached an all time low of 2,000 this morning. Our daytime nurse rushed to get him a transfusion before the ambulance… Continue Reading Day 628