Skip to content
  • Benjamin the Brave
  • The Benjamin Gilkey Fund
  • Rainbow Stars
  • Acute Lymphoblastic Leukemia
  • CMMRD
  • Resources
  • Blog

Tag: kidneys

Day 756/128

Laura Gilkey on January 26, 2017May 10, 2017

The construction crew of the new hospital research building worked all night long last night, pouring the concrete slab on the top floor. Every time Benjamin woke up to urinate,… Continue Reading Day 756/128

Categories: Uncategorized Tags: acute lymphoblastic leukemia, clinical trial, CT scan, diarrhea, kidneys, liver, nausea, oxygen, relapse, spleen, stomach pain25 Comments

Day 658/30

Laura Gilkey on October 20, 2016October 21, 2016

It doesn’t look like we’ll be going home any time soon. Benji was pleased to wake up unhooked from his fluids again. He usually gets up to empty his bladder… Continue Reading Day 658/30

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, bladder, blood pressure, bone marrow aspirate, dasatanib, fear, kidneys, platelets, relapse3 Comments

Day 624

Laura Gilkey on September 16, 2016September 16, 2016

They found leukemia blasts in Benjamin’s blood today. I hate that I am typing this right now. I’ve only recently stopped shaking enough to do so. The details of the… Continue Reading Day 624

Categories: Uncategorized Tags: acute lymphoblastic leukemia, allopurinol, bone marrow aspirate, CMMRD, kidneys, MRI, platelets, relapse22 Comments

Day 292

Laura Gilkey on October 20, 2015

We slept, and slept, and slept some more last night. Michael got Banyan ready for school this morning and we woke up to see them off, then Benji crawled back… Continue Reading Day 292

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood pressure, kidneys, long term maintenance, maintenance, methotrexate4 Comments

Day 286

Laura Gilkey on October 14, 2015October 14, 2015

Benji’s lips hurt again last night, and he just couldn’t leave them alone. We didn’t get much sleep up here on the seventh floor. Sarah spent the night with us… Continue Reading Day 286

Categories: Uncategorized Tags: acute lymphoblastic leukemia, cousins, creatinine, kidneys, mucositis, nausea, siblings4 Comments

Day 285

Laura Gilkey on October 14, 2015

Benjamin is no longer in isolation. He has been fever free for well over 24 hours, and his latest swab came back negative for rhinovirus–he doesn’t even have a common… Continue Reading Day 285

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, creatinine, kidneys, mucositis, Neupogen7 Comments

Posts navigation

Older posts

Sidebar

Footer Content