Day 337

It’s Friday. Fridays used to be clinic days. Now Fridays are bagel days. We started the day at our favorite bagel joint and things just fell into place afterwards. Life is so good right now, friends. Life is so good always. It’s LIFE. It’s the only one we experience, and we can choose how we… Continue Reading Day 337

Day 288

Benji took several more steps in the right direction today. His spirits were down when he woke; his lips were hurting, but mostly I think he was processing the idea of another day on the seventh floor. Fortunately, his funk was shortlived. He took a bath, then said he was hungry. I was happy to… Continue Reading Day 288

Day 287

According to our night nurse, Benji “slept through the night.” That’s not quite accurate, but we definitely got more sleep than we have in many days. It was like a delicious sleep appetizer. I woke up wanting more. I walked groggily to the community kitchenette before sunrise to get Benji some ice, and another mom… Continue Reading Day 287

Day 286

Benji’s lips hurt again last night, and he just couldn’t leave them alone. We didn’t get much sleep up here on the seventh floor. Sarah spent the night with us while her kids stayed with our dad (Paw Paw) in a hotel down the road. I was glad to have her here. The morning rounds… Continue Reading Day 286

Day 285

Benjamin is no longer in isolation. He has been fever free for well over 24 hours, and his latest swab came back negative for rhinovirus–he doesn’t even have a common cold. This news brought a light and lively mood to morning rounds. Benji’s creatinine level continues to decline; today it was 0.75. His kidneys have… Continue Reading Day 285