and everything seems to have gone terribly wrong that can but one breath at a time is an acceptable plan she tells herself and the air is still there ~ani… Continue Reading Day 752/124
Day 752/124
on Tag: marinol
on Day 750/122
on The goal for the day was to help Benjamin feel comfortable. I believe we are getting there. As the day comes to a close, I’m grateful that he feels better… Continue Reading Day 750/122
Day 722/94
on Tomorrow is Christmas Eve, and where we spend the holiday night is still very much up in the air. Benjamin and I both slept long and well last night. When… Continue Reading Day 722/94
Day 721/93
on Today was Benjamin Wilson Gilkey’s 9th birthday. There have been so many emotions flowing through this room today. I’m exhausted and I’m grateful. Next to me is a boy who… Continue Reading Day 721/93
Day 719/91
on Benji and I were up before shift change again. He was in great discomfort. He begged our night nurse not to draw morning labs–a daily procedure that has never bothered… Continue Reading Day 719/91
Day 718/90
on Benjamin and I slept well last night and were both awake at shift change. His numbers are holding steady. Saturday’s increase may have been sample bias, I don’t know; but… Continue Reading Day 718/90