Benji is sleeping next to me. He is pleasantly exhausted from a long, busy day that went very well. Benji was a little nervous this morning and his tummy hurt.… Continue Reading Day 739/111
Tag: nutrition
Day 604
It was a good feeling to wake up and know that we had a Saturday in Sarasota together. No one had to work today. No one had school projects today.… Continue Reading Day 604
Day 431
Benjamin stayed home from school today. He woke up super congested and coughing up a storm. He has been stuffy the last couple of mornings, but his congestion usually dissipates once he’s… Continue Reading Day 431
Day 416
Benjamin’s February steroid pulse has come to an end. Hallelujah. Every night this week, the medicine has reared its ugly head during the interminable, tear-filled wait between “please be seated” and… Continue Reading Day 416
Day 172
Just as he has every day since being discharged Friday, Benjamin woke up feeling nauseous. But for the second day in a row, he has told me that he “smells the hospital”… Continue Reading Day 172
Day 38
Another gorgeous day to end this almost perfect weekend. I woke up this morning and made a nice big Sunday breakfast, then sat down to two hours of research while Michael kept… Continue Reading Day 38