Day 748/120

Benjamin and I woke up during the morning blood draw. It was still dark. Our nurse had to do a cap change on Benjamin’s IV line because he got transfusions yesterday. The process is slightly more invasive than a normal draw; we both have to wear hats and masks, and we are a little out… Continue Reading Day 748/120

Day 747/119

We’re back on the seventh floor. It’s where we need to be right now. I’ve felt terrified, angry, guilty, relieved, and grateful today. Sitting here to write this feels exhausting, but these are just words. Benjamin has shown me what true resilience is. The sky was cotton candy pink this morning as we left for… Continue Reading Day 747/119

Day 691/63

Benjamin’s fever rose and fell throughout the night, and into the day. At morning lab draw, our nurse took a blood culture. Nothing has come back positive for bacterial growth. He had a sore throat most of the day, very little appetite, and a cough. He’s fighting a virus. At shift change an hour later… Continue Reading Day 691/63

Day 688/60

Benjamin didn’t sleep very well last night. His side was hurting intensely after yesterday’s platelet transfusion. I woke up before he did, when our day shift nurse came in to tell me he’d be getting a red blood cell transfusion today. I had a sinking feeling about his labs. I hate that feeling. His hemoglobin… Continue Reading Day 688/60

Day 686/58

Benji slept for twelve hours last night. I could tell it would be a long rest when he fell asleep. He needed it. The round of chemotherapy Benji finished yesterday is working quickly to suppress his marrow. All of his counts are dropping. His white blood cell count this morning was just over a thousand,… Continue Reading Day 686/58

Day 685/57

The last day of Benjamin’s intermediate level chemotherapy has come and gone. Now, we wait. This morning’s lab report showed a continued trend in the right direction. Benji’s white blood cell count was about 2450, and 27% of those cells were leukemia blasts. Such a palatable number compared to last week’s averages. His absolute neutrophil… Continue Reading Day 685/57