We’re back on the seventh floor. It’s where we need to be right now. I’ve felt terrified, angry, guilty, relieved, and grateful today. Sitting here to write this feels exhausting,… Continue Reading Day 747/119
Day 747/119
on Tag: kytril
on Day 746/118
on This has been our longest stretch away from the hospital since October. It’s been sweet, nourishing, comforting, and necessary. And I am so ready for it to end. Benjamin needs… Continue Reading Day 746/118
Day 712/84
on Benji woke up before the sun in horrible pain. I wondered what was happening; he felt so much better yesterday! He begged for a bath, but declined pain medicine. The… Continue Reading Day 712/84
Day 707/79
on Last night was a rough one. Benjamin woke up several times during our short sleep, unable to find comfort. His spleen hurt worse than it has in weeks. At first… Continue Reading Day 707/79
Day 602
on These are interesting days. After Benjamin woke up he clutched his tummy and asked for Kytril. By the time we got to school, he was totally fine and eager to play with… Continue Reading Day 602
Day 599
on The first day of the new schoolyear is in the books. The boys woke up happy, and despite very little sleep, I did too. Benjamin’s tummy hurt again, but I… Continue Reading Day 599