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Tag: neutropenia

Day 728/100

Laura Gilkey on December 29, 2016December 30, 2016

We received the results of Benjamin’s bone marrow aspirate today. We don’t have the complete analysis, and a clear path has not yet been laid in front of us. But… Continue Reading Day 728/100

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, inotuzumab, neutropenia, platelets, relapse, stomach pain14 Comments

Day 694/66

Laura Gilkey on November 25, 2016November 25, 2016

We had a rough night up here on 7 South. Benjamin woke up many times coughing, and with each episode he cried in pain. He couldn’t pinpoint where the pain… Continue Reading Day 694/66

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, blood transfusion, hair loss, neutropenia, platelets, relapse10 Comments

Day 690/62

Laura Gilkey on November 21, 2016November 22, 2016

Benji asked for pain medication last night. His side started hurting too badly to sleep. So for the first time in a week, he took a low dose of oral… Continue Reading Day 690/62

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, neutropenia, platelets, port, relapse, transfusion5 Comments

Day 639/11

Laura Gilkey on October 1, 2016

Benjamin slept quite late this morning. I was relieved when he woke up, went to the bathroom, and balanced his input and output. He won’t need lasix tonight. He is… Continue Reading Day 639/11

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bone marrow transplant, family, neutropenia, relapse1 Comment

Day 276

Laura Gilkey on October 5, 2015October 5, 2015

The morning was so uplifting. The afternoon was so dizzying. Now, as I settle in for another night up here on the seventh floor, I am going inward. I am… Continue Reading Day 276

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, bacteria, methotrexate, neutropenia, port, siblings5 Comments

Day 227

Laura Gilkey on August 16, 2015

Benji’s counts continue to drop. There are more bruises today, and he’s still quite pale, but he feels terrific. He played with friends nearly all morning. He splashed and swam… Continue Reading Day 227

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Erwinia, neutropenia, school, transfusion, vincristine1 Comment

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