Benjamin didn’t get up at all last night to use the bathroom, but when he woke up this morning, he corrected his problem with a record-breaking liter of urine. I’ve… Continue Reading Day 659/31
Day 659/31
on Tag: acute lymphoblastic leukemia
on Day 658/30
on It doesn’t look like we’ll be going home any time soon. Benji was pleased to wake up unhooked from his fluids again. He usually gets up to empty his bladder… Continue Reading Day 658/30
Day 657/29
on Neither of us slept very well last night. Benjamin needed platelets to prepare him for today’s lumbar puncture, so our room filled with nurses at 3am, and at fifteen minute… Continue Reading Day 657/29
Day 656/28
on Benjamin woke up in the middle of the night with low belly pain. I asked him to describe it as he was falling back to sleep, and he said, tearfully, “I… Continue Reading Day 656/28
Day 655/27
on 30 was the number of the day today. Benjamin’s absolute neutrophil count (ANC) dipped back down to 30. Not the direction we wanted it to go. This almost certainly means… Continue Reading Day 655/27
Day 654/26
on This Sunday began quietly. Benji slept in a little, and I enjoyed my morning coffee over some research. My moms’ group came through for me on the platelet desensitization question. It… Continue Reading Day 654/26