Benjamin slept deeply last night. For the first time since we’ve been here, I woke up a full hour before he did. I’d gotten in a yoga routine, two cups… Continue Reading Day 632/4
Day 632/4
on Category: Uncategorized
on Day 631/3
on Our night nurse was wonderful. Perfectly stealthy, kind, gentle and more than competent. She drew labs at 6:30am, and the numbers came back during shift change. They made me a… Continue Reading Day 631/3
Day 630/2
on Benjamin and I enjoyed a much more relaxing day today. He slept well; I did not, because a floating nurse from PICU kept trying to give Benjamin oxygen. I assured… Continue Reading Day 630/2
Day 629/1
on Benjamin slept soundly. He received a platelet transfusion in the night, and another one when he woke up, elevating his platelet level to 47,000–just below the threshold required for his… Continue Reading Day 629/1
Day 628
on I expected a big challenge today. Instead, Benjamin totally rose to the occasion. He has been an absolute joy, even with no food and a totally empty gastrointestinal tract, all… Continue Reading Day 628
Day 627
on Benjamin’s bone marrow aspirate results are in. His marrow is 56% infected with Pre-B Cell Acute Lymphoblastic Leukemia. Of course this isn’t good news, but it is a bit of… Continue Reading Day 627