Rhythm. A word and an idea I’ve always loved. Tonight, our rhythms feel very off. I’m listening to Benjamin breathe through an oxygen mask while he sleeps. His breaths are… Continue Reading Day 759/131
Day 759/131
on Tag: heart
on Day 627
on Benjamin’s bone marrow aspirate results are in. His marrow is 56% infected with Pre-B Cell Acute Lymphoblastic Leukemia. Of course this isn’t good news, but it is a bit of… Continue Reading Day 627
Day 424
on Benjamin had a follow-up visit with cardiology today. It was an appointment I scheduled months ago, as part of our arrangement to check his suspected patent ductus arteriosus (PDA) annually,… Continue Reading Day 424