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Tag: relapse

Day 662/34

Laura Gilkey on October 24, 2016October 24, 2016

We. Are. HOME.  I hardly slept last night. I’m not sure why. Every creak of the door sounded more amplified, every beep more pronounced. I sat up to watch the… Continue Reading Day 662/34

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, bone marrow aspirate, dasatanib, relapse4 Comments

Day 661/33

Laura Gilkey on October 23, 2016October 23, 2016

We didn’t get to go home today. We were richly blessed right here instead. Benji’s absolute neutrophil count (ANC) dipped down to 140. His blast number went up a little,… Continue Reading Day 661/33

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, family, gratitude, immunotherapy, kindness, port, relapse3 Comments

Day 660/32

Laura Gilkey on October 22, 2016October 23, 2016

Today was a good day. I don’t have expectations, but I have hope, and that is a much different and more beautiful animal. Benji and I slept in, Saturday style.… Continue Reading Day 660/32

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, blood pressure, family, friends, platelets, relapse, siblings3 Comments

Day 659/31

Laura Gilkey on October 21, 2016October 22, 2016

Benjamin didn’t get up at all last night to use the bathroom, but when he woke up this morning, he corrected his problem with a record-breaking liter of urine. I’ve… Continue Reading Day 659/31

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bladder, Blinatumomab, bone marrow transplant, CMMRD, immunotherapy, relapse, siblings6 Comments

Day 658/30

Laura Gilkey on October 20, 2016October 21, 2016

It doesn’t look like we’ll be going home any time soon. Benji was pleased to wake up unhooked from his fluids again. He usually gets up to empty his bladder… Continue Reading Day 658/30

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, bladder, blood pressure, bone marrow aspirate, dasatanib, fear, kidneys, platelets, relapse3 Comments

Day 656/28

Laura Gilkey on October 18, 2016October 19, 2016

Benjamin woke up in the middle of the night with low belly pain. I asked him to describe it as he was falling back to sleep, and he said, tearfully, “I… Continue Reading Day 656/28

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, blood donation, marriage, platelets, port, relapse, school, siblings4 Comments

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