Day 767/139

Benjamin continues to do his brave work, and we continue to make the best decisions we can for him. This has always been true, of course, but we are accustomed to being informed by evidence. Now we are being informed by instinct and love alone. I was woken in the middle of the night when… Continue Reading Day 767/139

Day 693/65

Today was a very good day. I admit the holiday-ness of it all threatened my emotional stability more than once. But Benji felt better today than he has in many days, and we just have so much to be thankful for. I am thankful for the blood donor whose platelets were infused into Benjamin’s veins… Continue Reading Day 693/65