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Tag: marriage

Day 747/119

Laura Gilkey on January 17, 2017January 18, 2017

We’re back on the seventh floor. It’s where we need to be right now. I’ve felt terrified, angry, guilty, relieved, and grateful today. Sitting here to write this feels exhausting,… Continue Reading Day 747/119

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, cyclophosphamide, etoposide, kytril, lumbar puncture, marriage, platelets, relapse, siblings, spleen17 Comments

Day 712/84

Laura Gilkey on December 14, 2016December 14, 2016

Benji woke up before the sun in horrible pain. I wondered what was happening; he felt so much better yesterday! He begged for a bath, but declined pain medicine. The… Continue Reading Day 712/84

Categories: Uncategorized Tags: acute lymphoblastic leukemia, inotuzumab, kytril, marriage, nausea, platelets, relapse, spleen11 Comments

Day 693/65

Laura Gilkey on November 24, 2016November 25, 2016

Today was a very good day. I admit the holiday-ness of it all threatened my emotional stability more than once. But Benji felt better today than he has in many… Continue Reading Day 693/65

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusions, family, gratitude, marriage, platelets, relapse, research, siblings5 Comments

Day 656/28

Laura Gilkey on October 18, 2016October 19, 2016

Benjamin woke up in the middle of the night with low belly pain. I asked him to describe it as he was falling back to sleep, and he said, tearfully, “I… Continue Reading Day 656/28

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, blood donation, marriage, platelets, port, relapse, school, siblings4 Comments

Day 626

Laura Gilkey on September 19, 2016

We are all settled in up here on the seventh floor. It was painful to leave our house this morning. Michael and I spent a lot of time just holding… Continue Reading Day 626

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, marriage, platelets, reinduction, relapse, siblings, transfusion8 Comments

Day 621

Laura Gilkey on September 13, 2016September 13, 2016

Last night it was Benji’s turn to have a nightmare. He woke up so scared, but wouldn’t tell me what he was dreaming about. He didn’t want to go back… Continue Reading Day 621

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, genetics, grandparents, lynch syndrome, marriage, PMS2, siblings1 Comment

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