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Tag: CMMRD

Day 627

Laura Gilkey on September 19, 2016September 20, 2016

Benjamin’s bone marrow aspirate results are in. His marrow is 56% infected with Pre-B Cell Acute Lymphoblastic Leukemia. Of course this isn’t good news, but it is a bit of… Continue Reading Day 627

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, colonoscopy, heart, lumbar puncture, methotrexate toxicity, relapse, school6 Comments

Day 626

Laura Gilkey on September 19, 2016

We are all settled in up here on the seventh floor. It was painful to leave our house this morning. Michael and I spent a lot of time just holding… Continue Reading Day 626

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, marriage, platelets, reinduction, relapse, siblings, transfusion8 Comments

Day 624

Laura Gilkey on September 16, 2016September 16, 2016

They found leukemia blasts in Benjamin’s blood today. I hate that I am typing this right now. I’ve only recently stopped shaking enough to do so. The details of the… Continue Reading Day 624

Categories: Uncategorized Tags: acute lymphoblastic leukemia, allopurinol, bone marrow aspirate, CMMRD, kidneys, MRI, platelets, relapse22 Comments

Day 622

Laura Gilkey on September 14, 2016

I broke my own rule last night and stayed up way, way, way too late researching. My mind was in turbo mode after our Moffitt meeting. I thought it would be… Continue Reading Day 622

Categories: Uncategorized Tags: acute lymphoblastic leukemia, chemo delay, CMMRD, colonoscopy, endoscopy, insurance, MRI, sleep2 Comments

Day 621

Laura Gilkey on September 13, 2016September 13, 2016

Last night it was Benji’s turn to have a nightmare. He woke up so scared, but wouldn’t tell me what he was dreaming about. He didn’t want to go back… Continue Reading Day 621

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, genetics, grandparents, lynch syndrome, marriage, PMS2, siblings1 Comment

Day 620

Laura Gilkey on September 12, 2016September 12, 2016

I had an alligator dream last night. I used to have them all the time; they have been the subject of a large portion of my life’s nightmares. It’s been… Continue Reading Day 620

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bruising, chemo delay, CMMRD, platelets, septra3 Comments

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