I woke up early and tried to let Benji sleep as long as he could. When the day shift nurses started coming in, taking vitals, listening to his heart, getting… Continue Reading Day 644/16
Day 644/16
on Tag: absolute neutrophil count (ANC)
on Day 641/13
on Benjamin had another sleepy day. His counts continue to drop, and his ability to fight infection is waning. After he woke up, ate breakfast, and took his morning medicine, we… Continue Reading Day 641/13
Day 607
on We got home last night this morning at 3am. Benjamin went through the highly invasive emergency room protocol: port access, peripheral poking and blood draw, insanely sticky nodes on his… Continue Reading Day 607
Day 579
on Over the bridge we went today. Benjamin woke in good spirits, but his tummy was hurting. He was super hungry but nervous about eating. I reminded him that the last… Continue Reading Day 579
Day 523
on I’m so thankful for the extra time we gave ourselves this morning. I woke up at 6 and we were on the road by 7:30, even though Benjamin’s appointment at… Continue Reading Day 523
Day 502
on When I’m tired, fear is harder to fight. I know this is true tonight. The boys both had great days at school. Benjamin had a field trip to our local… Continue Reading Day 502