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Category: Uncategorized

Day 650/22

Laura Gilkey on October 12, 2016October 13, 2016

So much information to process, constantly. So many opportunities to wander down dangerous roads, mentally. The rewards are great when the mind is quiet and presence comes easy. Benjamin and… Continue Reading Day 650/22

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bone marrow transplant, colonoscopy, dasatanib, daunorubicin, dexrazoxane, erwinaze, polyps, relapse, vincristine3 Comments

Day 649/21

Laura Gilkey on October 11, 2016October 12, 2016

Tonight is our 23rd night on the 7th floor. Our longest stay before Benjamin’s relapse was 22 nights. Maybe that’s why things have felt more emotional today. Maybe it’s the… Continue Reading Day 649/21

Categories: Uncategorized Tags: acute lymphoblastic leukemia, behavior, emotions, lasix, platelets, relapse, school, transfusion2 Comments

Day 648/20

Laura Gilkey on October 10, 2016October 11, 2016

I woke up to a nurse practitioner’s voice saying that Benji would need a red blood transfusion today. He was still sleeping, she was examining him. I opened my eyes… Continue Reading Day 648/20

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, Erwinia shortage, hemoglobin, neuropathy, school, transfusion3 Comments

Day 647/19

Laura Gilkey on October 9, 2016October 10, 2016

Benji woke up feeling happy. His daddy and brother were on their way to see him, and his body felt good. Our favorite nurse was back at morning shift change,… Continue Reading Day 647/19

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, Erwinia shortage, friends, port, relapse, school, transfusion2 Comments

Day 646/18

Laura Gilkey on October 8, 2016October 9, 2016

A nightmare woke Benji up today before his nurses did this morning. He was scared and didn’t want to go back to sleep. He returned to reality, nestled into me… Continue Reading Day 646/18

Categories: Uncategorized Tags: acute lymphoblastic leukemia, diarrhea, Erwinia, family, nausea, platelets, relapse, transfusion2 Comments

Day 645/17

Laura Gilkey on October 7, 2016

Benjamin was super tired this morning. He slept in later than he has since we’ve been here. I figured after yesterday’s diuretic episode he was probably pretty depleted and needed… Continue Reading Day 645/17

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, allopurinol, Erwinia, relapse, schoolLeave a comment

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