on Benjamin’s labs this morning showed a huge increase in leukemia blasts. More than double, up to 52%. We haven’t seen a peripheral number that high since diagnosis. His platelets dropped in half also, down to 9,000. I couldn’t believe what I was groggily seeing on the screen while Benji slept. After the nurses left I… Continue Reading Day 675/47
on Today was lovely. Benjamin felt great and was wildly energetic as soon as he woke up. Out of isolation, he was off to the races to play with the nurses and take laps around the floor. I followed along, still in my pajamas. Benji’s lab numbers continue to slowly trend in the right direction. His… Continue Reading Day 674/46
on Tonight is our 23rd night on the 7th floor. Our longest stay before Benjamin’s relapse was 22 nights. Maybe that’s why things have felt more emotional today. Maybe it’s the autumn outside I know we’re missing. Maybe it’s watching more friends ring their bells and go home. Maybe it’s just okay to feel sad sometimes,… Continue Reading Day 649/21
on We’ll be spending one more night on the seventh floor. I was up last night at 3am, after our night nurse came in to tell us that Benjamin’s output was significantly short of balancing his input of fluid. Even with two additional trips to the bathroom, she was concerned. She suggested a dose of Lasix.… Continue Reading Day 140