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Tag: transfusion

Day 648/20

Laura Gilkey on October 10, 2016October 11, 2016

I woke up to a nurse practitioner’s voice saying that Benji would need a red blood transfusion today. He was still sleeping, she was examining him. I opened my eyes… Continue Reading Day 648/20

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, Erwinia shortage, hemoglobin, neuropathy, school, transfusion3 Comments

Day 647/19

Laura Gilkey on October 9, 2016October 10, 2016

Benji woke up feeling happy. His daddy and brother were on their way to see him, and his body felt good. Our favorite nurse was back at morning shift change,… Continue Reading Day 647/19

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, Erwinia shortage, friends, port, relapse, school, transfusion2 Comments

Day 646/18

Laura Gilkey on October 8, 2016October 9, 2016

A nightmare woke Benji up today before his nurses did this morning. He was scared and didn’t want to go back to sleep. He returned to reality, nestled into me… Continue Reading Day 646/18

Categories: Uncategorized Tags: acute lymphoblastic leukemia, diarrhea, Erwinia, family, nausea, platelets, relapse, transfusion2 Comments

Day 642/14

Laura Gilkey on October 4, 2016October 4, 2016

Benjamin’s reinduction phase is halfway complete. He took his last dose of Dexamethasone tonight. His allopurinol has been discontinued because his uric acid has stabilized, as has his phosphorous, sodium… Continue Reading Day 642/14

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, colonoscopy, family, lynch syndrome, platelets, polyps, relapse, school, transfusion, virus4 Comments

Day 640/12

Laura Gilkey on October 2, 2016October 2, 2016

Benjamin has had what his nurses described as an “eventful day.” This morning seems like ages ago. Once again I let Benjamin sleep as late as possible. When he woke… Continue Reading Day 640/12

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dasatanib, dexamethasone, Erwinia, family, platelets, polyps, relapse, transfusion1 Comment

Day 628

Laura Gilkey on September 20, 2016September 21, 2016

I expected a big challenge today. Instead, Benjamin totally rose to the occasion. He has been an absolute joy, even with no food and a totally empty gastrointestinal tract, all… Continue Reading Day 628

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bone marrow transplant, colonoscopy, endoscopy, genetics, lumbar puncture, pet scan, platelets, transfusion6 Comments

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