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Tag: nausea

Day 683/55

Laura Gilkey on November 14, 2016November 15, 2016

When Benjamin is in pain, everything seems so much harder. His spleen continued to agonize him throughout the night. It woke him up and made his eyes wide with fear.… Continue Reading Day 683/55

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, cyclophosphamide, etoposide, nausea, pain, platelets, relapse, spleen, transfusion, ultrasound10 Comments

Day 654/26

Laura Gilkey on October 16, 2016October 17, 2016

This Sunday began quietly. Benji slept in a little, and I enjoyed my morning coffee over some research. My moms’ group came through for me on the platelet desensitization question. It… Continue Reading Day 654/26

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, grandparents, nausea, platelets, port, relapse, siblings4 Comments

Day 646/18

Laura Gilkey on October 8, 2016October 9, 2016

A nightmare woke Benji up today before his nurses did this morning. He was scared and didn’t want to go back to sleep. He returned to reality, nestled into me… Continue Reading Day 646/18

Categories: Uncategorized Tags: acute lymphoblastic leukemia, diarrhea, Erwinia, family, nausea, platelets, relapse, transfusion2 Comments

Day 595

Laura Gilkey on August 18, 2016August 19, 2016

The boys both woke up in good moods. We were all together on a workday morning; a rare treat. We took them out for their favorite bagels before we headed… Continue Reading Day 595

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, constitutional mismatch repair deficiency, DNA, genetics, nausea, siblings5 Comments

Day 589

Laura Gilkey on August 12, 2016August 12, 2016

Benji asked for Kytril again this morning, but this time it was different, and we both knew it. He wasn’t nauseous. He was so hungry his stomach hurt. We communicated… Continue Reading Day 589

Categories: Uncategorized Tags: acute lymphoblastic leukemia, kytril, nauseaLeave a comment

Day 587

Laura Gilkey on August 10, 2016

I woke up early this morning. I saw Michael off to work and enjoyed a full two hours of silence and space before the boys woke up. It allowed me… Continue Reading Day 587

Categories: Uncategorized Tags: acute lymphoblastic leukemia, grandparents, kytril, methotrexate, nauseaLeave a comment

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