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Tag: liver

Day 760/132

Laura Gilkey on January 30, 2017May 10, 2017

“Stand up straight and realize who you are, that you tower over your circumstances. You are a child of God. Stand up straight.” ~Maya Angelou These words saved me today.… Continue Reading Day 760/132

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, chemotherapy, clinical trial, fear, feeding tube, fever, hope, liver, lungs, pain, relapse, siblings, spleen, total parenteral nutrition90 Comments

Day 756/128

Laura Gilkey on January 26, 2017May 10, 2017

The construction crew of the new hospital research building worked all night long last night, pouring the concrete slab on the top floor. Every time Benjamin woke up to urinate,… Continue Reading Day 756/128

Categories: Uncategorized Tags: acute lymphoblastic leukemia, clinical trial, CT scan, diarrhea, kidneys, liver, nausea, oxygen, relapse, spleen, stomach pain25 Comments

Day 537

Laura Gilkey on June 21, 2016

This morning, it was Banyan’s turn to be brave. He needed a tetanus booster this summer and today was the day. He was dreading it. Benji taught him his Jedi… Continue Reading Day 537

Categories: Uncategorized Tags: acute lymphoblastic leukemia, immunity, liver, PTSD, siblings1 Comment

Day 311

Laura Gilkey on November 8, 2015

It was another sweet day spent with family. Benji had a little bit of nausea when he woke up, but it resolved with time and a bath. Once he got… Continue Reading Day 311

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, liver, schoolLeave a comment

Day 281

Laura Gilkey on October 9, 2015October 9, 2015

We had a very sleepy morning here on the seventh floor. We both slept well last night but woke up frequently. Our night nurse was less experienced than her colleagues,… Continue Reading Day 281

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, acute renal injury, creatinine, liver, mucositis, Stevens Johnson Syndrome3 Comments

Day 263

Laura Gilkey on September 21, 2015

Michael and I both had a hard time sleeping last night, so when Benji padded in before 6am asking for breakfast, I begged for more time. But his hunger turns… Continue Reading Day 263

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, liver, methotrexate, schoolLeave a comment

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