Yesterday was such a solidly restorative day. I woke up feeling accomplished, laundry done, lunches packed, broth made, pill box filled. I decided it was time to go to back… Continue Reading Day 375
Day 375
on Tag: Stevens Johnson Syndrome
on Day 284
on Benji’s little wet cough persisted in the night. He complied with my requests to inhale deeply and get his coughs out, and by the morning his chest sounded completely clear,… Continue Reading Day 284
Day 283
on “Mucosal desquamation.” That’s the name for what is happening inside Benjamin’s body due to Methotrexate-induced Stevens Johnson Syndrome. His lips, mouth, tongue, throat and belly are all sloughing internally and… Continue Reading Day 283
Day 282
on This roller coaster hasn’t come to a halt just yet. My intentions are being refocused tonight. I cannot grow complacent. It isn’t enough to just wait to be discharged. We… Continue Reading Day 282
Day 281
on We had a very sleepy morning here on the seventh floor. We both slept well last night but woke up frequently. Our night nurse was less experienced than her colleagues,… Continue Reading Day 281
Day 280
on Benji and I slept well. He woke up often but went back to sleep easily once I’d refreshed his water and put a new cold compress on his chest. He… Continue Reading Day 280